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Surgery caused autoimmune disease or Drug Induced Lupus
Autoimmune Diseases | Last Active: Jul 20 9:47am | Replies (49)Comment receiving replies
Two days ago I tested positive for Influenza B and I am very ill. Never had Influenza before (that I know of) and never want to have it again. It is horrible. Now I know why my symptoms started to worsen at the beginning of the week. My hips and lower back ached horribly. As the virus has progressed the body aches have lessened and now my autoimmune pain is less than it has been in months. I suspect that my immune system fighting off the virus has taken away from attacking my own body.
Mayo Clinic called earlier today and after reviewing my referral the Rheumatology Dept. doesn't feel that they can help me. My information is being transferred to general medicine so they can review it. I'm a little concerned that no one will be able to help me as the rheumatology dept. seemed like the right fit. They are supposed to email me some questions and call in the next 48 hours.
Replies to "Two days ago I tested positive for Influenza B and I am very ill. Never had..."
@johnbishop Hi John, I have been to my primary care Dr. for the flu. I have been prescribed Tamiflu as well as my wife and kids. No idea how I came down with it as I have never tested positive for the flu before. I'm on day 4 for symptoms and I think my fever may be done. It had gotten to around 101 at its highest. I am controlling the fever with Tylenol. My Dr's office has only had one other confirmed case of the flu this fall. My pharmacy had to order the medicine as I am their first prescription request this fall. I'm still very ill, but feel like maybe the worst is over. I hope so. I have a bad cough and keep getting the chills and sweats along with a bad headache.
My call from Mayo is in regards to the drug induced lupus/auto immune issues I have been suffering from for several months. The Rheumatology Dept. at Mayo advised me today that my condition doesn't fit their expertise and they are transferring my referral/medical case to General Internal Medicine. I questioned the lady that called about the drug induced lupus and how they couldn't help with that? She replied she didn't know. She said that General Internal Medicine would be calling me in the next 48 hours (I assume business hours, she didn't clarify) and send me an email with additional questions. If Mayo doesn't agree to see me based off my symptoms/unknown illness I'm not for sure what I'm going to do. I can't keep living everyday in pain without answers. I will hold out hope that I can get in with General Medicine and get some answers.
@fox940 sorry for my confusion, hoping the flu symptoms go away quick and you can find some answers for your questions in regards to drug induced lupus.
John
Hi Shane (@fox940), in reading your earlier posts again, am I correct that you contacted Mayo Clinic for an appointment in the Rheumatology Division or did your Rheumatologist call for the referral? It sounds like your Rheumatologist believes the Mayo Clinic may have more to offer, so I believe a physician appeal to the Rheumatology Division may be a good idea so that your doctor can discuss your case in more detail and why he thinks Mayo Clinic might be able to help you.
Please don't give up trying. I have a good feeling about this and I am a big fan of doctors talking with other doctors and working together to get to the bottom of a patients health problem which is the team approach the Mayo Clinic doctors use.
Hoping you get some answers soon.
John
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@fox940, I agree with @robbinr. The influenza is nothing to mess around with. I don't think I would wait for 48 hours to hear from the doctors. I would keep bugging them. Mayo Clinic has some good information here:
https://www.mayoclinic.org/diseases-conditions/flu/symptoms-causes/syc-20351719
Do you also have a high temperature? I have no medical training or experience other than to know when the body temp goes up that can be a bad sign when it gets too high...and you need to do something about it.
John