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Addison's Disease: Tired of being tired

Diabetes & Endocrine System | Last Active: Aug 13, 2023 | Replies (23)

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3 different endocrinologists and my primary has also been involved with the treatment. Do you know of any other treatments for addisons besides prednisone. Hydrocortisone makes me violently ill. but the way to treat the disease seems to be cut and dried for me it is putting a square peg in a round hole. Its the replacement of corticoscal streroids (sp) but I have read of fleurocostal again (sp) that I may suggest. My first concern for now is with all the these things that could effect my immune system is there a possibility the lymes is causing problems or has the cortisone taken me down further? The steroids had caused a weight gain up to 250 a dietary change and I am down to 190 plus dropping all my diabetic numbers/indicators. Sometimes it is just hard to stay positive and work hard to achieve most people take for granted.

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Replies to "3 different endocrinologists and my primary has also been involved with the treatment. Do you know..."

I was diagnosed with Addison's Disease this spring when I had a side effect to Keytruda, the immunotherapy drug to treat triple negative breast cancer. It attacked my adrenal glands so they no longer work. To maintain, I take 10mg Hydrocortisone in the morning and 5 mg in the afternoon. I am constantly fatigued, sore and achy. I feel like I am 100 years old most of the time and I used to be very active teaching 3 spin classes a week, walking, working out with weights, etc. I see that you did Hydrocortisone makes you violently ill, but maybe you can try again and take it with certain foods? I seem to do well when I eat yogurt and berries for breakfast and then take my pills. I only feel nauseated some of the time and that's when I don't eat yogurt for breakfast. Wondering how others cope with the fatigue and sore joints/muscles.