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@techi Sure, Techi. Has anyone taken a good CT or MRI of our brain, especially around the cerebral cortex area? Mayo did not for me, but the locals did. It showed a growth of amorphous white matter with is a symptom of A-Cys. Also, I am have a really tough time focusing on things now. The little cross-hatch furrows in front of the words on the screen or the page cause me to try to squint to see what is in front of me. This squinting is, I think, the partial cause of my #9 headaches just behind my eyes. This is also a sign of several different mutations of amyloidosis, including hATTR and A-Cys, and some others. Any, how is your Serum FreeLiteChain(c) doing. Lower than 1.4 mg/dL, I hope. And your 24-hr proteinuria? Lower than 0.4 per 24 hours, I hope. Have they checked your ANA? Hopefully it is not out of reference range.
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Yes they have checked my Ana and it is positive and apparently very high but they don't think anything is wrong. They said the can't find any autoimmune problems it could be a residual of autoimmune encephalitis disease l had prior but l do notice sometimes like l am not focusing. It seems very strange.And l never had a headache like this before that l am aware of. My family said when l had,my encephalitis l complained about headaches but l can't remember that and all the neurologist l have act like they don't want to bother dealing with what's happening. So l don't know if it's part of a brain issue or a liver problem. And what doctor to turn to but l am blessed l not having anymore memory problems and l think that was all due to medicines so l guess all is good. So l had to take ibuprofen with my epi-pen next to me but l can't take those all the time due to my liver so the doctors tell me tramadol which l don't think that's good either. And they did ct, MRI scans. I squint too but I had to change my glasses and l have mild galcoma and l take drops for that but l noticed with the headaches l was having l couldn't stand bright lights but that is probably normal when you have had a headache so long. So what are they doing for you? And who is treating you?