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Brain Tumors and Aphasia (Speech Problems)

Posted by Teresa, Volunteer Mentor @hopeful33250, Nov 15, 2017

Hi All:

As we know, the ability to communicate is important to all of us, whether we are introverts or extroverts - we all need to talk to others. However, often brain disorders like tumors, neurological disorders like MS or Parkinson's (to just name a few) can affect our communication efforts. We might have a difficult time finding the right words, or we might find the words, but discover that they are coming out sounding garbled or not in the right order. These problems affecting speech can be referred to as Aphasia. The National Aphasia Association recently sent out information about a new book that addresses this. Written by Joe Biden, whose son had brain cancer, here is the link to this article, https://www.aphasia.org/stories/beau-biden-aphasia/

What has been your experience with Aphasia? Have you or a family member been affected by a communication disorder? If so, please share with us.

Teresa

Interested in more discussions like this? Go to the Brain Tumor Support Group.

aphasia | @aphasia | Dec 19, 2017
In reply to @hopeful33250 "Hello All: I found this article regarding the power of singing in order to help restore..." + (show)
@hopeful33250

Hello All:

I found this article regarding the power of singing in order to help restore speech after a stroke. I thought you would find it interesting, https://www.npr.org/sections/health-shots/2011/12/26/144152193/singing-therapy-helps-stroke-patients-speak-again.

Do you know of any experiences with singing helping your speech?

@dianaodecatur, @mkf1, @KMH, @ikampel2, @Gray,@parker80138, @patrassi, @techi, @gremeika, @ditim, @ndapanda, @marieelise,@joturner3,@gremeika, @aphasia and @dianaodecatur @aphasia

Jump to this post

?????????????????????

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Dec 19, 2017
In reply to @hopeful33250 "Hello All: I found this article regarding the power of singing in order to help restore..." + (show)
@hopeful33250

Hello All:

I found this article regarding the power of singing in order to help restore speech after a stroke. I thought you would find it interesting, https://www.npr.org/sections/health-shots/2011/12/26/144152193/singing-therapy-helps-stroke-patients-speak-again.

Do you know of any experiences with singing helping your speech?

@dianaodecatur, @mkf1, @KMH, @ikampel2, @Gray,@parker80138, @patrassi, @techi, @gremeika, @ditim, @ndapanda, @marieelise,@joturner3,@gremeika, @aphasia and @dianaodecatur @aphasia

Jump to this post

Hi Aphasia,
I removed your private email address from your message above. Connect is a public website and we recommend not sharing personal contact information. We don't want you to get unwanted spam emails.

I see that you would like to connect with Teresa by private email. You can send members a private message following these instructions:
1. Click on the member's name. In this case @hopeful33250
2. Click on Send Private Message.
3. Write your message.
4. Click Send message.

However, I strongly encourage you to post a message to Teresa here in this discussion. There are many people living with aphasia who would appreciate connecting and sharing experiences with both you and Teresa. By replying to her in this discussion, more people will join in and we can form a support group.

I look forward to hearing from you too.

REPLY
aphasia | @aphasia | Dec 22, 2017
In reply to @hopeful33250 "Hello All: I found this article regarding the power of singing in order to help restore..." + (show)
@hopeful33250

Hello All:

I found this article regarding the power of singing in order to help restore speech after a stroke. I thought you would find it interesting, https://www.npr.org/sections/health-shots/2011/12/26/144152193/singing-therapy-helps-stroke-patients-speak-again.

Do you know of any experiences with singing helping your speech?

@dianaodecatur, @mkf1, @KMH, @ikampel2, @Gray,@parker80138, @patrassi, @techi, @gremeika, @ditim, @ndapanda, @marieelise,@joturner3,@gremeika, @aphasia and @dianaodecatur @aphasia

Jump to this post

  

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Dec 22, 2017
In reply to @hopeful33250 "Hello All: I found this article regarding the power of singing in order to help restore..." + (show)
@hopeful33250

Hello All:

I found this article regarding the power of singing in order to help restore speech after a stroke. I thought you would find it interesting, https://www.npr.org/sections/health-shots/2011/12/26/144152193/singing-therapy-helps-stroke-patients-speak-again.

Do you know of any experiences with singing helping your speech?

@dianaodecatur, @mkf1, @KMH, @ikampel2, @Gray,@parker80138, @patrassi, @techi, @gremeika, @ditim, @ndapanda, @marieelise,@joturner3,@gremeika, @aphasia and @dianaodecatur @aphasia

Jump to this post

Hello @aphasia

It looks like you tried to post a message here. Try again or let us know if you need assistance.

Teresa

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jun 20, 2018

June is National Aphasia month and I would like you to know about a program that will be available on Friday, June 22, online. This program will introduce you to a therapy called, "Work Out Your Words." This program synchronizes language and cognitive tasks with movement. Sounds like a great idea to me for movement and speech problems which I have that occur very unpredictably. I am looking forward to watching this, please join me! Here is the link, http://workoutyourwords.com/pdf/Work%20Out%20Your%20Words%20flyer%20June.pdf

Teresa

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