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Daughter with Newly Diagnosed Generalized Absence Seizures
Epilepsy & Seizures | Last Active: Mar 22, 2019 | Replies (36)Comment receiving replies
My daughter was diagnosed with absence seizures around the age of 3. She went several years with moderate medication control and then when she was 9 and on keppra, she had about 5 grand mal seizures in about a month. We switched neurologists and they took her off keppra and the grand mals stopped. They even took her off meds completely for a short time but her absence seizures came back. Now she is 12 and started menstruating and had her first grand mal in years in the shower. The doctors did an X-ray and found calcification in the brain. She is meeting with an endocrinologist this week and I am a nervous wreck. Has anyone had any experience with thyroid conditions causing epilepsy or any other endocrinologist visits for this reason? Or had calcification in the brain?
Replies to "My daughter was diagnosed with absence seizures around the age of 3. She went several years..."
Hello @punkychica
I can certainly understand your concern for your daughter. Did your doctor indicate why he is referring her to an endocrinologist?
Endocrinologists are often the doctors who see patients with high calcium levels (which can cause calcifications in different parts of the body). Here is an article that helps explain high calcium levels, https://www.healthline.com/health/calcification. High levels of calcium can often indicate a problem with the parathyroid (different than the thyroid, but located in the same general area). Did your doctor indicate what part of the brain was calcified?
I'm looking forward to hearing from you. Wishing you and your daughter well. Will you post an update after you see the endocrinologist?
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Hi @punkychica,
I moved your message to this existing discussion, "Daughter with Newly Diagnosed Generalized Absence Seizures," so that you can connect with members who are also talking about absence seizures in a child.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.
I'd like to encourage @boston2mayo @cbranson3 @mmas @lolorn @rchllmorgan @baldwin7 @jakedduck1 @ahernandez @lucyd719 to offer their support with your 12-year-old daughter who was diagnosed with absence seizures around the age of 3, was on and off medications, and then had her first grand mal in years in the shower and was found to have calcification in the brain. I trust they may have some input regarding your questions: Has anyone had any experience with thyroid conditions causing epilepsy or any other endocrinologist visits for this reason? Or had calcification in the brain?
While awaiting their return, I thought you might be interested in this Mayo Clinic information on absence seizures https://www.mayoclinic.org/diseases-conditions/petit-mal-seizure/symptoms-causes/syc-20359683.
You mentioned feeling like a nervous wreck. What would you say is your biggest concern at this time, @punkychica?