← Return to Daughter with Newly Diagnosed Generalized Absence Seizures

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@boston2mayo

Hi. My son at the age of 9 was also diagnosed with absence seizures. We were told that they could be managed with medication but the absence seizures slowly became full blown seizures. Around a dozen per day, mostly nocturnal. We tried several different medications but none of them stopped the seizures and had horrible side affects. The local doctors were clueless. Things got really bad. We weren’t getting any help and his seizures got worse. I could tell you some horror stories but I won’t. Trust your instincts. Don’t fall into the trap that we did at first by trusting the doctors every word. We left our care in Boston and found a miracle at the Mayo Clinic in Rochester, MN. But only after a battle with insurance. My son is now 17 and seizure free.

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Replies to "Hi. My son at the age of 9 was also diagnosed with absence seizures. We were..."

I'm at a loss of what my son can do about my granddaughter. I joined this group 7 weeks ago. 1 week after my granddaughter was put in a coma because she was having seziures. Now 8 weeks later she is still in a coma and they have tried probably 20 different medicines at different doses. This past week they started electro shock therapy. We can't afford to transfer her anywhere else. Our insurance won't cover it. I am going crazy with worry about what the doctors at UNM Hospital in Albuquerque New Mexico will want to try next. HELP!!

What meds are helping him remain seizure free? My daughter has focal seizures. Has been on multiple meds and 2 brain surgeries. Still seizures!