← Return to Daughter with Newly Diagnosed Generalized Absence Seizures

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@ahernandez

Hi my name is Amanda. I'm 34 yrs old and started having seizures the end of March this year. I had MRIs and EEGs done but turned out normal. The place I was going to at the time just kept switching my seizure meds and didn't seem like they wanted to find the cause. As before all of this I was healthy with no problems. So I advocated for myself and made an appt at Mayo. And I'm so glad I did...my first appt with the neurologist gave me hope. I had more tests done (MRI, PET scan, CT scan, EEG, spinal tap, and others just to rule out cancer) and they worked with an auto-immune specialist and I was finally diagnosed in Sept with Autoimmune Epilepsy. They found an abnormal antibody (Gabba B) in my blood and CSF fluid. I am now on immunotherapy, just had my last steroid infusion and am on an immunosuppresant. I am feeling so much better and haven't had a seizure since July. I don't know if this would be relevant to your daughter, but I know my condition is rare and I believe still new. Not many people know about it. I am still on seizure meds for the time: Keppra, Oxcarbazepine, and clonazipram (to help me sleep and anxiety). My immunosuppresant is CellCept. The goal is to have me off all meds within a year (fingers crossed). I hope this information helps or at least opens a door for you to ask more questions to your doctor.
Good luck and you can always message me if you have any questions or want to talk.
Amanda 🙂

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Replies to "Hi my name is Amanda. I'm 34 yrs old and started having seizures the end of..."

This has been so helpful! Thank you and I will keep all of this in mind. Thank you for responding! My daughter has been severely allergic to Ethosuxamide and Lamictal out of the four we have tried. A small miracle has occurred, we were going to try Depakote by another Neurologist that I was not fond of (any of them, actually), but we weaned her off Keppra and since last Tuesday, my daughter has gone from over 200 per day to perhaps 1 absence seizure in the past few days!! NO meds on board at this time. She is getting an EEG next week. We're just taking one day at a time without an explanation except since she's been on meds, the seizures have risen to over 400%.