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@loli

Hello nmstauffer8,
My name is Loli, and I am a cancer survivor since 2013. Mouth cancer in my cheek.
When I was diagnosed, my first visit was to church to give thanks for, at that time, 62 years of healthy life. From there, I went to Staples and bought a ring book with dividers. Then, I went home and started preparing to do my research. First divider, Doctors; second medications, third treatments, fourth questions and answers; and so on and so forth. I kind of made it into a project of life, and I was ready to have all the information in one place. When going to doctors, always go with someone else who will be in charge of writing all the answers to the questions that you will have prepared before your appointment. Research all the possible treatments, the best doctors.
Where is your fiancé's cancer?

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Replies to "Hello nmstauffer8, My name is Loli, and I am a cancer survivor since 2013. Mouth cancer..."

Hi Loli, My fiance's cancer is in the base of his tongue and lymphnode on his neck, squamous cell carcinoma keratinizing, p16 negative. We've been to multiple appointments and very overwhelmed. I have a notebook and an app that records the discussions with the doctors. We are very concerned about chemo and radiation and long term effects. We have been looking at immunotherapy but the success rate isn't as high. He is only 46 years old and has so much life to live. The chemo/radiation cocktail is being given an 85% success rate but the long term effects seem so overwhelming.