Hi Joe, could you share more information? What type of PEG tube do you have? Will you use Isosource or Jevity alone or will you try blenderized food to supplement? How active are you? What support do you have - family, church or other caretaker? Do you see healthcare specialists on a regular basis? Advice is good but in the end many decisions are yours. Are you experiencing any specific problems or issues?

Hi Joe, My husband had squamous cell carcinoma - spindle variety - which started as a lesion on the top of his head and metastasized.. He had many surgeries and radiation (the last of which destroyed his saliva glands). He had to get a PEG tube in the middle of the last round of radiation because he got down to 116 lbs from 140 lbs. When his salivary glands were destroyed, he thought he'd have a tube for the rest of his life. He learned to use tiny sips of water as saliva replacement, and the tube was removed 6 months later. None of the products sold as replacement came even close. Keep trying different things, because you just never know what will be a solution to your situation.

As to that current situation, get a Vitamix or Blendtec blender (medical discounts) and start using REAL FOOD, at least as a supplement to a formula. This was critical to my husband's come back. Do not be deterred by the push-back you will receive from doctors and dieticians, because they don't CONTROL it. Suggest you head over to a Facebook page called Adult Tube Feeding, where you will find more tips than you could imagine.

He also responded to Keytruda, and the PET scans were nothing short of miraculous.

Joe, I hope you’re doing well. Your story is amazing. I had a feeding tube for five months and it was the worst thing I ever had. Bless you stay healthy and be strong my friend