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@grizz20

My sister (in her mid 60s) has angiosarcoma of the scalp. She had surgery & flap reconstruction and is healing well. Now, even tho the surgeon told her he removed all the cancer, she’s been made aware that radiation is most likely in her future.
Has anyone else been diagnosed with this rare & aggressive cancer? I know she would benefit to know she’s not alone. I just want to help her.

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Replies to "My sister (in her mid 60s) has angiosarcoma of the scalp. She had surgery & flap..."

Hello @grizz20, I do not know anyone and had to look this cancer up.
However, I do know that radiation is often considered a good way of mopping
up any stray cells after successful surgery. On the scalp, the radiotherapy
should not be too bad, compared to those of us who experience its effects
in the mouth.

It sounds to me as if your sister is fortunate that the cancer was found in
an early stage and could be removed.

It's hard for people with rare diseases to find peers. There might be a
rare diseases group here but as far as having surgery and radiation to the
head and neck go, we are you group! I wish your sister well.

Hi @grizz20, we have several members on Mayo Clinic Connect who have experience with angiosarcoma. You may be interested in connecting with them in this discussion:
- Diagnosed with sarcoma? Let's share https://connect.mayoclinic.org/discussion/diagnosed-with-sarcoma-lets-share/