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Meet others living with Head & Neck Cancer: Introduce yourself
Head & Neck Cancer | Last Active: 3 days ago | Replies (476)Comment receiving replies
My name is Kristi. I was diagnosed with adenoid cystic carcinoma in my salivary gland in 2001. So far I have been very lucky and have not had any reoccurrence. I did 16 treatments at the University of Washington of neutron beam radiation. I feel very blessed at where I am today. Every night I say a prayer for my health, happiness, and safety. If I can help with anything let me know.
Replies to "My name is Kristi. I was diagnosed with adenoid cystic carcinoma in my salivary gland in..."
@kkelly1023 Kristi- yes, sometimes all you can do is pray.
Hi Kristi. I too was diagnosed with ACC. Mine was in 2007. Unfortunately I had my first recourence in 2013 and pretty much have been battling lung Mets, liver Mets and more cancer in the neck and to distant lymph nodes as well ever since. I'll be headed back to Mayo in about 3 weeks for updated scans. I am pretty sure I'll need some sort of treatment in 2020 but I always remain optimistic about the future and like you have a deep sense of spirituality. Prayer is everyday and it has certainly helped me through the rough spots and I will pray that you never have a recourence.
This is very impressive, @kkelly1023. I know a number of people with this rare form of HNC and yes some are doing very well after the initial round of treatment. Others are struggling and have had a multitude of treatments. I'm not a religious person but I live in hope and gratitude to be alive and reasonably functional! I would love to see better treatment pathways for ACC because it's a hard cancer to nip in the bud permanently.
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Thank you kindly Kristi. Best wishes to you for continued health
..............and enough strength to get through the holiday season!!