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Meet others living with Head & Neck Cancer: Introduce yourself
Head & Neck Cancer | Last Active: 9 hours ago | Replies (500)Comment receiving replies
Hello @mary76 I have had recurrent tongue cancer which is a bit different and was treatable with more surgery and some radiotherapy. A fellow New Zealand patient has had good results from stereotactic radiotherapy to the lesions on her lungs and Keytruda, the immunotherapy drug. I have heard that 20% of patients with metastatic head and neck or oropharangeal cancer respond well to these immunotherapy drugs. I'm not an expert and don't know your situation it seems there are options out there.
I'm really sorry to hear this has happened to you. It is gut-wrenching, I know. You are doing the right thing by reaching out and asking questions. I found I needed counselling when the cancer came back. It helped a lot.
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Hi Maureen: Have you heard of hearing loss due to radiation treatment?
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Hi Alpaca,
This is Loli; I know I have not communicated in a long time. I do not remember if I shared in here, that my sister, who had tongue cancer 18 years ago, came back with jaw cancer and six months later, it had jumped to her cheekbone and the tumor was inoperable. For this reason, she had chemo and radiation. She finished her treatment 16 months ago at the Mayo clinic in Scottsdale. She checks at Mayo every three months. The problem is, that her tongue has not healed completely. She still has a burning feeling that prevents her from eating. She has tried hemp and cbd oils and all types of pain medications with no avail. If she wants to eat, she has to use solicaine (I know I am misspelling it) directly on her tongue, but the discomfort is continuos.
If you or anybody in the chat has had this problem and has found confort, please share it . She is desperate.
Greetings, and I pray everyone is doing well.