Hello @mary76 I have had recurrent tongue cancer which is a bit different and was treatable with more surgery and some radiotherapy. A fellow New Zealand patient has had good results from stereotactic radiotherapy to the lesions on her lungs and Keytruda, the immunotherapy drug. I have heard that 20% of patients with metastatic head and neck or oropharangeal cancer respond well to these immunotherapy drugs. I'm not an expert and don't know your situation it seems there are options out there.
I'm really sorry to hear this has happened to you. It is gut-wrenching, I know. You are doing the right thing by reaching out and asking questions. I found I needed counselling when the cancer came back. It helped a lot.

I’d love to get an update from new and regular members. How are you doing?

@mary76, what treatment options are being offered to you for recurrent oropharynx cancer? How are you doing emotionally?
@alpaca how are things down under in New Zealand?
@loli How is your sister? Did you see the discussions in the Skin Health group about burning mouth syndrome? I wonder if members there may be able to offer some tips. Let me know if you want direct links to those discussions.
@karenjf did you find relief for the burning?
@mybadthryroid how was surgery? How are you doing now?

I suppose it would be silly for me to mention everyone member of the group. I just want to let you know that I’m sitting here on a Saturday morning and thinking of you. Pull up a chair and let’s chat.