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@cpaulestep

My name is Paul. I was diagnosed with cancer inside my right cheek in June of 2016. I underwent a flap surgery followed by 33 radiation treatments (in addition to a clinical trial with Cetuximab, which I wasn't able to complete). I thought everything was fine until a recurrence the next year. I had another flap surgery (which was much more extensive than the first) but no other treatment. Then in 2018 it came back yet again, this time on the outside of my cheek. I wasn't given much hope, really, but I persuaded the medical team to try immunotherapy. It didn't work at all. So this past fall I started on chemotherapy, once every three weeks (carboplatin). My quality of life isn't too bad, really, as I can still eat on my own and other than the huge wound (which seems to be healing) and the chemotherapy side effects, I'm pretty well off. But the medical team keeps reminding me that this chemotherapy will not cure the disease, but will slow it down, at best. That isn't what I want to hear, as I'm only 52 years old and otherwise in excellent health. I'd be interested in hearing from other folks similarly situated. Of particular interest is the recent development at the Mayo Clinic of treatment with the measles virus, which I understand is headed for clinical trial with squamous cell carcinoma patients.

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Replies to "My name is Paul. I was diagnosed with cancer inside my right cheek in June of..."

@cpaulestep Dear Paul, You don't say anything about the background of this definitely unexpected cancer. Did they ever give you any ideas about why this happened? With prayers, J