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Meet others living with Head & Neck Cancer: Introduce yourself
Head & Neck Cancer | Last Active: Sep 21 5:27pm | Replies (538)Comment receiving replies
Hello Stephanie. I know the shock state you are in and sympathize. I want to recommend Mayo as a great choice for another opinion. I had Squamous Cell Carcinoma but in a very rare location near my middle ear and that drew me to look around for opinions. U. Michigan was close, but it turned out a 10 hour drive to Rochester, MN allowed me to experience the Mayo system and meet with an amazing team of doctors. I had surgery and have done all followup at Mayo and so glad that was my choice. I had chemo and radiation at UM because it is only 1 hour from home and the Mayo doctors highly recommended the head and neck radiation oncologist there. That saved me from living in Rochester for 7 weeks during treatment. Good luck to you and don't let distance distract you from where you seek another opinion.
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So sorry to hear what your sister has endured. I really admire your family organisation. Having you there for three weeks will take so much pressure off her. I hope she is well enough during the treatment to enjoy the togetherness with her sister:)
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Dear friends,
I have been reading all your posts, and kind of unable to put in words what has been going on in my life as of lately.
My sister's cancer has come back. She had squamous cell in her jaw 14 months ago. She had a very successful surgery at Mayo in Scottsdale, but she did not have radiation or chemo. After six months, she started having pain in her face, close to her ear, and it was diagnosed that it was nerve damage. A few days ago, she had her checkup, and they found out that the cancer had jumped to her cheekbone, near the ear, and now she will have to have both, radiation and quemo. We have been organizing ourselves, and I will be her caregiver for three weeks at the end of March and I will be there for the bell ringing. She lives in Mexico City and I in Virginia; so it is a great endeavor for all of us; but we have great faith in Mayo, and she in Dr Hinni.
I remind you that I had Squamous cell in my mouth, and had surgery and radiation at University of Maryland five years ago. I did have radiation for eight weeks after surgery, and also very happy with Dr. Strome and UM. I just recently read that we are close to 20 million cancer survivors in the USA! There is HOPE for all of us. We need to be positive and forward going, and our own advocates.
Love you all, Loli