← Return to Meet others living with Head & Neck Cancer: Introduce yourself

Discussion

Meet others living with Head & Neck Cancer: Introduce yourself

Head & Neck Cancer | Last Active: Sep 21 5:27pm | Replies (538)
Comment receiving replies
@hoppy

Hi I’m Steve from Kansas City Missouri. I was diagnosed with lymph node and tongue Stage 4a HPV Positive last December. I was not a surgical candidate.
My chemo and radiation ended March 6th.

I am doing well and have had clean studies so far.

I will be having my one year Scan in March

Jump to this post

Replies to "Hi I’m Steve from Kansas City Missouri. I was diagnosed with lymph node and tongue Stage..."
Colleen Young, Connect Director | @colleenyoung | Jan 21, 2018

Hi Steve and welcome to Connect. We look forward to getting to know you. What treatment side effects, if any, do you deal with?

VIEW AND REPLY
loli | @loli | Jan 21, 2018

Hi Steve, welcome to the group. March will be my fifth anniversary, and tomorrow I have an appointment in Baltimore for my check up. I am praying all is well. I feel really well, and like you, my only complaint is dry mouth, though my thyroid was also affected and I lost four molars to receding gums. All related to radiation. I am very positive about all this little issues: Like, less teeth to brush, you know.
What do you do for dry mouth?

VIEW AND REPLY
Adrienne, Alumna Mentor | @adriennef | Jan 21, 2018

Hi Steve! We are so happy to have you here. It sounds like you’ve been through a lot, and I am so glad to hear you are doing well! What a gift to celebrate your one year anniversary soon. Congratulations!

I also had cancer in my tongue and lymph nodes. I’m curious as to why you were not a candidate for surgery (if you are comfortable sharing!). Did the chemo and radiation completely eliminate any visible tumor?

Thanks for joining us here on Connect. Your story is such an encouragement!

VIEW AND REPLY
Steve | @hoppy | Jan 21, 2018

Hi Adrienne,,
Thank you for the warm welcome. I saw two ENT’s that confirmed that with the location of the tumor on my tongue that would have to remove my tongue,Vocal Cords and I would lose my inability to swallow.

As of now 10 and one half months I am cancer free.

I’m anxious for my one year Scan.

VIEW AND REPLY
Steve | @hoppy | Jan 21, 2018

Thank you so much for the kind welcome.

I’ve found water and spray biotine are my best friend for dry mouth.

Yes I give thanks for the email gifts I have received from my cancer such as the extended family I have obtained.

I look forward to getting to know you all.

VIEW AND REPLY
Adrienne, Alumna Mentor | @adriennef | Jan 21, 2018

That is such fantastic news. I am so happy that the chemo and radiation were so effective!

What type of scan do you have planned at one year?

VIEW AND REPLY
Jano | @jano | Jan 22, 2018

Jan from Jacksonville.......Hi Steve, welcome to the club. Ugh! My 18 mos petscan is tomorrow Jan 23. Wishing you the best. I had radiation and chemo for a tumor on pallette of mouth. No surgery too. Im lucky, but went thru hell as you did. Hang in and stay well.our new normal. Happy New Year.

VIEW AND REPLY
Steve | @hoppy | Jan 22, 2018

Hi there Jan thank you so much. Yes this is our new normal and fortunate to still be able to be with our loved ones. Happy New Yearsto you and your loved ones as well.

VIEW AND REPLY