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← Return to White-Sutton syndrome
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Brain & Nervous System | Last Active: Sep 29, 2023 | Replies (29)
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My daughter was also just diagnosed with White-Sutton Syndrome, and I am desperate to learn more about it. She is a happy, healthy, social girl who just turned 3 and suffers from developmental delay, most notably in expressive language/speech.
Replies to "My daughter was also just diagnosed with White-Sutton Syndrome, and I am desperate to learn more..."
We are in the process of starting a foundation to help parents just like you. The website (www.whitesutton.org) is still under construction, but we've put together a packet for the families of newly diagnosed WHSUS patients, that has been reviewed by Dr. Sutton himself: https://whitesutton.org/downloads/WHSUSexplained.pdf
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Welcome to Connect, @mgd11
I'm confident that @snicoledenny and @lisapraska will join me in welcoming you. Can you tell us more about your journey to being diagnosed with White-Sutton Syndrome?