← Return to Been to an Epilepsy Monitoring Unit? What’s it like?

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@jktaheri

I can not remember if I have responded to this before (and that is why it appears again in my email) or just read it. I have spent many, many weeks over the last five years at Mayo's Epilepsy Monitoring Unit in Jacksonville. Prior to my Mayo visits, I had only had the 24 hour EEG home monitoring and done 30 minute sessions in the local sleep center. In Jacksonville's Mayo, they are a phenomenal team. They deal with difficult situations all day long (and night). They deal well with grumpiness after several days of no sleep, still treating you with kindness, PATIENCE, and respect. They accommodate not just your wants/needs as a patient, but are also gracious to those that stay with you. Are days of bed bound sleeplessness hellish?? Y E S ! BUT, if I had had none of those things done, they would not have had the much needed answers, and I would not be on the road to recovery. Those weeks there saved my brain and my life. DO IT.

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