← Return to Been to an Epilepsy Monitoring Unit? What’s it like?

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@dawn_giacabazi

@robertjr Welcome to Connect!! I feel your pain all too well with a lifelong battle with seizures. Doctors used to think that it was triggered by a car accident that I was in. However I can remember as a child in school having what I know Now to be aueas and partial seizures. I was on dozens of different medications over the years and finally ended up at in the Mayo Clinic monitoring unit for seven days. The clinic was fantastic as well as the staff!! The only thing that I think I would have changed was the use of my laptop. Lying in a bed or relaxing in a chair was not my lifestyle. At that Time I was working 12 hour days had two young children married at a very busy lifestyle. I spent a good eight hours of my day on a computer if not more. On my last 48 hours in the hospital I asked if I could resume some of my normal work activities I had brought my laptop and they allowed me to use the laptop and then I started having seizure activity they started Trileptal. I no longer have migraines daily and only had one aura in 10 years. No terrible side effects.

So grateful to my Mayo Clinic Team!!!
Dawn

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Replies to "@robertjr Welcome to Connect!! I feel your pain all too well with a lifelong battle with..."

Dawn,thanks .I guess back then finding out early in my life didnt really mean much.I had a fewtest done then it was likemaybe he will outgrow it..:-)Like i said ,only thing done was changemeds when id start getting too many close together.That was main reason i stopped seeing neurologist for years, just had my family doctor do everything far as pesctiptions and test.wish there was a internet ps nocomputers back then lol.Never heard of Mayo Clinic or places like that..When i was young for year thought i was only person in town that had this.From Massachusetts,.Sonice to have aplace that cares aboutand helps people with epilepsy .Im too old now but who knows what might have happen if!People in here an d Mayo are priceless.I could go on but gonnastop.