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Radiation therapy for vulvar cancer

Gynecologic Cancers | Last Active: Dec 11, 2023 | Replies (117)

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@vsinn2000

I've got a long road ahead of me wirh this doc. Wondering if a change is in order? My husband has been amazing, always willing to do whatever I need. I know it's got to be over whelming for him but he just keeps going. Without violating any rules and realizing g it's Mayo Clinics site, what are you seeing in teaching hospitals vs new therapies? Its really confusing.

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Replies to "I've got a long road ahead of me wirh this doc. Wondering if a change is..."

Visinn, you are not violating any rules by talking about getting second opinions, finding treatment centers and/or clinical trials. People can recommend treatment centers other than Mayo Clinic on this site. Naturally, I recommend seeking a second opinion at Mayo 🙂 Here's the contact info should you wish to make contact http://mayocl.in/1mtmR63

I found 2 clinical trials for vulvar cancer listed here: http://www.mayo.edu/research/clinical-trials/search-results?keyword=vulvar%20cancer

I'm not sure I understand your question regarding teaching hospitals vs. new therapies. Are you asking if teaching hospitals are more likely to offer new therapies? Can you elaborate?

Hi Colleen,
I was weighing the idea of a teaching hospital sticking to accepted/standard protocol in their clinics versus taking their research into their clinics. My brain does tend to wander into some convoluted lines of thinking.
Checking treatment plans and various supporting therapies at different facilities is eye opening as well.
Trying to stay focused on deciding what I want or expect out of the experience of treatment is difficult when so many new topics come that need investigated. This is definitely a situation where Type A/oldest child/mom is not helping! Lol. I can't possibly learn it all!
Thank you for the information.
Vicky

Colleen,
I'm not finding those trials. Apparently that is another skill I need to learn. Are you aware of any others? It seems that any other cancer has a gene or receptor that can dramatically increase targeting specific cancers. I know this type is rare but my hope is to find such a trial and get treatment for this nailed down for future newbies! And yes, my wonder woman complex is leaking through! I'm feeling ready to kick some cancer butt!
Vicky

@vsinn2000

I like you attitude, Vicky, "I’m feeling ready to kick some cancer butt!"

Teresa

Hello Vicky: I "googled" clinical trials through the NIH website and found this link, you might want to take a look at it, https://clinicaltrials.gov/ct2/results?cond=Vulvar+Cancer&term=&cntry1=NA%3AUS&state1=&recrs=

Teresa