@unicorn, Christa, are you doing ANYTHING at all? Not even saline
inhalations? I hope you know how serious the repercussions can be of not doing
anything at all. This type of infection can consume you if not careful. It can
progress to a point of no return. Will you please pm me about recent sputem test
results and anything else that might be helpful for me to help advocate with
you? Do you know if you are currently colonized with a particular bacterium?
Please, please, respond. Hugs - Terri
 

Hi Terri: I'm doing saline and swimming, but it is getting worse. I will see doc in a few weeks and maybe we can come up with a plan. I know one lady on site took one drug only for a month, then another. I'm going to ask about that. I dont know what type of bug, but will find out. There seem to be a lot more options than the ones I.ve been offered. The big 3 are not tolerable. Anyway, hanging in, CT scan monday. Thank you for the support xo Christa

@unicorn , Christa, that lady that was taking one drug on alternating months was me! Please check your pm box, I have a message for you.

hey
Terri what's a pm box?

@unicorn Christa, the nitric oxide treatment in Canada is still in clinical trials. You would have to sign up to participate if the trial is still taking people in. It is not a good idea to do nothing when you are seriously ill. You could die waiting for future treatments that are not available yet. That is just my opinion.

@unicorn, Christa, a pm box is your private email on connect that only you & I can see. To get there, click on your @unicorn that will bring up your Connect account along with your picture. To the right of your pic it will say 'private message' I believe it is highlighted in blue. Let me know if you have trouble getting there.

@unicorn If you look at the menu bar on top of your screen, you should see a few symbols on the right. The one showing an envelope is what you should open. When your mouse hovers over it, it should show Private Messages.