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@cowgirlmt , Hello there, and welcome to our support group. Do you have a first name that you would prefer to use? What do you do exactly for work in the medical field? I can tell you that a large percentage of the MAC infected people on this site were nurses or other healthcare workers. I feel there is a correlation there. If you work in a large facility, then you may want to switch your career to a smaller venue like private doctor's offices. That would give you less exposure to the germs that are in the larger hospitals. I am wondering if you have ever had your immune system tested? Where & why are you having pain?
Replies to "@cowgirlmt , Hello there, and welcome to our support group. Do you have a first name..."
@cowgirlmt, You are welcome Kimmy. Do you work in ICU units by any chance? Have you asked your doctor how many MAC/bronchiectasis patients they have treated? It is said that you should see someone who has treated at least 12 patients. Is this a private practice physician you are seeing? Also, I used to drink a tea called 'Breathe Easy' by Tradition Medicines. You can Google it. Krogers sells it in the natural food isle. (not the coffee and tea isle. This tea helps a lot with loosening that tight feeling. It worked for me anyway.
I don't work in an ICU; just a small rural hospital. In my clinic we have treated no one, I am the first one for it lol. I am seeing my primary where I work, but then go out of town to see 2 different specialist. I have started using different essential oils in my home, which helps a little bit.
@cowgirlmt, I am relieved that you do not work in an ICU! That is the worst place to catch antibiotic-resistant bugs. It is extremely important that you see someone who has treated MAC on a regular basis, and knows what they are doing. Did you research the two specialists that you will be seeing next?
@windwalker The infectious disease doctor I have seen states that he has treated many cases. None that are my age though. He is very well known in my area, and everyone I work with have recommended him, stating he is very thorough. I keep in very close contact with my primary about everything, actually have an appointment today. I agree with you, that taking those 2 treatments seem like overkill. I just want to get better lol; as we all do. Just haven't found the right treatment yet.
As for the susceptibility test I have no idea, I have a call in to the specialist that set up the biopsy and ordered all labs.
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@windwalker thank you so much for taking the time to read my post. I go by Kimmy 🙂 I currently work for a small rural hospital and clinic. I have never had my immune system tested.. I have a constant tightness in the right side of the chest, when there is a flare up it radiates down my right side; breathing becomes labored, lightheaded, and dizzy. I called my doctor and he said that at this point it is to early to see any changes in regards to my symptoms.
I have been asking many questions! That is the only way I can understand what is going on. I am sensitive to medications so worried about long-term usage.