I've backed off Gabapentin from 600 mg 3/day to 300 mg 2/day after almost a year when I realized that I could deal with the pain but not the numbness in both legs and up into the groin and finding that Gabapentin did nothing for the numbness. I'm researching the possibility of having hand controls installed in my car as driving with the numbness is a dangerous nightmare. Has anyone had experience with hand controls?

Been researching hand controls for 6 months, and here in Florida it's quite a process. You have to be evaluated by a professional licenses evaluator, who then gives you a prescribed if approved. The hand controls can be installed either as temporary or permanent, but most mechanics prefer the permanent ones (which cost a bit more.) After installation you are required to take a test from DMV. I have not begun it yet, but like you my legs are dangerously numb and hand controls will be necessary to retain independence. I don't know what the procedure is in your state...I really don't want to sound negative or discouraging, but there are quite a few requirements in Florida. Good luck. I admire your tenacity.

First I called Kempf which seems to be the top of the line for hand controls, but when I was told that cost is usually between $9,000 and $11,000, I realized that I'd have to explore less expensive (WAY less expensive!) options. A call to United Access here in Missouri revealed a process similar to Florida's: 1. Letter from a doctor (I said I'd wait until I saw a neurologist in St. Louis because I expect/hope that he will be more knowledgeable about small fiber polyneuropathy than most neurologists.) 2. Referral for a "Driving Evaluation" at one of the local hospital systems. No mention of a DMV test, but I suspect that's part of the process. I asked about any insurance coverage, but he couldn't give me anything. I'll stay in touch with you, keeptrying, and share any further information.