@sheeb My gfr has been down in the 30s and 40s, but now has jumped back up into the 60s. This is not a good sign. Rather, it is evidence of progressing amyloidosis, and worsening of disease. I don't know if a nutritionist will help, but they might. Have you had your SERUM FreeLightChain tested, and the 24-hr urinary protein measured? If your Serum (not your plasma) FreeLight Chain is above about 1.4 mg/dL, you have your culprit. Same with a urinary protein above 0.5 Gram per 24-hr. Read the Red Light Warnings on Amyloidosis on ALNYLAM.com, and view the videos on Amyloidosis on Mayoclinic.org, and Amyloidosis.org. There is only a small chance this is your problem, but because it is always fatal if not treated properly, it is worth checking it out.

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