We have appointment with a new oncologist Friday. After her visit last week and the way she was treated there is no way to continue with them. I do wish we lived closer to Mayo. If she would have had the last surgery at mayo they wanted to keep her there for 6 months for treatment. With small children it was impossible for her and we had the impression her local doctor was going to work with Mayo but that isn’t happening. A phone call discussion with mayo would be great. When someone’s life is at stake I don’t understand how you could not feel several opinions are better than one. If this doctors child was fighting for their life he would do anything and everything to save them. Apparently he has never experienced anything like what we are going through or he just doesn’t care. Hopefully our next experience and doctor will be better. If not we will keep trying. Whatever it takes! Thanks for the information everyone.