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Liver hemangioma/liver resection
Digestive Health | Last Active: Dec 12, 2018 | Replies (36)Comment receiving replies
Hello, my first question is, did you have a liver biopsy done?
My GYN found a large upper right quadrant mass in July of 2015. Had MRI referred to surgeon at local hospital, initially he thought it was a hemogemia . He wanted to do surgery and really didn't consider if it was anything else. I took it upon myself to send my MRI to Yale New Haven Hospital to a surgeon who specializes with "anything liver". First he did a a whole batch of blood work, all came back within normal ranges. Then we did a liver biopsy ..... came back as metastatic melanoma 14 cm X 7 cm BRAF wIldtype with the NRAS mutation and unknown primary. Never had skin , ocular or muscolar Melanoma. Inoperable and I have been treated with immunotherapy. My tumor is 3.8 cm X 1.9 cm and has not metastisized to any other part of my body. I'm stable but still receive immunotherapy every 3 weeks. No surgery as my Melanoma travelled through my blood and not my lymphatic system. I tell you this not to scare you but to inform you to have every test possible prior to surgery.
I will keep you in my prayers.
Replies to "Hello, my first question is, did you have a liver biopsy done? My GYN found a..."
Also, I wanted to say I'm sorry to hear you had a metastatic melanoma. I'm glad things are stable and I hope you continue to do well. I will request the tests as you mentioned. I'm happy I finally got referred to a team that specializes in liver matters far more in depth than my doctors here in Fargo.
@phillrachel, I wish you a safe trip to Mayo.
We have a Mayo Connect discussion group titled Visiting Mayo Clinic that you might find helpful since this is your first trip there. https://connect.mayoclinic.org/group/traveling-to-mayo-clinic-minnesota/
Feel free to ask any questions so that we can make your trip a less stressful.
Rosemary
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No I have never had a liver biopsy done. We have only done CT scans since it was found in 2010. They did do blood work once and it came back all normal. I have not ever had an MRI done either. All CT scans have said it was a hemangioma. I go to Mayo for my appointment next Wednesday so I guess we will see what all tests they want to run. My doctor here just referred me to them since it has grown again and he says I need a liver resection and Mayo is the nearest surgeon. I'm 6 hours away in Fargo, ND. They have told me to plan for 5 to 7 days of testing but I'm not sure how long it will really take. This is my first experience at Mayo.