Hello, Wish I could have seen Doctor Tennant! He did guide me, mentioned the Hormones. Well, my Endocrinologist was rude when I TRIED to show her that information. Not even Neurosurgeons are interested when they caused this painful Disease. Dura cut. I belong to NORD but this is not considered a Rare Disorder. I mentioned this to another post about Doctor Tennant. I emailed him about scar tissue removal. He said, do not do it. In other words, no more surgeries, procedures. I had asked my Pain Management Doctor who I respect, about it. It went on and off for a few months and I was getting worse, desperate. So, I did it. Doctor Tennant was right of course. I'm worse than before. There is another informative site, Practical Pain Management, PPM. I have the site on my phone so if I try to explain to a doctor what I have I "TRY" to have them read just the 1st paragraph, they look, hand phone back to me. I have searched and searched US, other countries where patients with AA there are sites to join the cause of AA but thats it! PPM goes into detail. Is this how it ends? Many many dr's who are responsible and yet they go on to the next case and sleep well. Thank You