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Any Adhesive Arachnoiditis members here?

Spine Health | Last Active: Dec 4 6:51pm | Replies (117)
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@carolinapearl53

Hi. My name is Dianna. I found out 6 years ago I have AA. Well, try and explain this one to your friends. I found a wonderful a wonderful doctor on HHI. I live in South Carolina. The doctor I found has allowed me to treat my pain with the meds he can issue. I am on medical marijuana, Amitriptyline, and hydrocodone. This man has saved my life. Without his help, I cannot imagine how I would feel. I had an MRI about 3 months ago, and unfortunately the nerves have already started to “clump together “. Not something I am looking forward to, but right now, there is not a cure for this disease. I wish you well, and should you be in the area (Hilton Head SC) I’m sure you could become a patient of his.

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kimspr3 | @kimspr3 | Jun 19, 2019

HELLO DIANNA, I ALSO HAVE A.A. I HAD A PAIM PUMP IMPLANTED HELPS A LOT. IT IS PROGRAMED I RECEIVE HYDROMORPHONE ALL THE TIME WITH NON OPIATES ALSO. WITH THAT I HAVE A REMOTE CALLED A BOLUS SO IF NEEDED I PUMT THAT ON THE PUMP AND I RECEIVE AN EXTRA DOSE WHICH I CAN USE 7 TIMES A DAY EVERY 2 AND HALF HR. I WANT OFF THE OPIATES SO BADLY. DR. PUT ME ON A DRUG NOT AN OPIATE WHICH CAN HELP THAT HORRIBLE PAIN AND JUMPING NERVES. JUST STARTED WITH THE DRUG, VERY LOW DOES TO START. HELPING OTHERS IN MY P. M. OFFICE. WISH YOU GOOD LUCK!

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