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Adenoid cystic carcinoma - left tongue base

Head & Neck Cancer | Last Active: Dec 27, 2018 | Replies (24)

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@douger

An update on my wife Willa's journey with rare adenoid cystic carcinoma of the salivary gland cancer. We attended a follow up appointment with her radiation oncologist at Princess Margaret Cancer Hospital (PM) in Toronto on Aug 23/18 . There had been no appreciable change in the size of the tumor since Feb. however she remains unable to swallow anything and all intake of food, hydraulics, medication remains by way of G tube. Her food intake consists of 5 250mlg containers of Nestles ISO Source daily which is sufficient to maintain her weight and energy. This process goes on very well and Willa has exceptional acceptance of the program. During this visit we asked about possible new trials which might be helpful. On October 3 we returned to PM and met with a Medical Oncologist and his team to review possibilities. One study would have involved taking Selinexor however it must be taken orally and not crushed which was a no go. Systemic chemotherapy was also discussed but with but results have not proven successful In the end Willa opted to continue seeing her regular radiation oncologist every 6 months and family doctor as needed. For those of you not familiar with the Canadian Health care system all of this including feeding equipment, food and drugs is covered by our government sponsored health plan.

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Replies to "An update on my wife Willa's journey with rare adenoid cystic carcinoma of the salivary gland..."

Hi @douger, Just thought I would check to see how you and Willa are doing. I'd love to get an update if you have a minute.