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Adenoid cystic carcinoma - left tongue base

Head & Neck Cancer | Last Active: Dec 27, 2018 | Replies (24)

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@hopeful33250

Hello @dakotapat

I have been thinking about you and wondering how you were doing. Have you had any new treatments recently?

Please feel free to update us you are comfortable doing so.

We wish you well,

Teresa

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Replies to "Hello @dakotapat I have been thinking about you and wondering how you were doing. Have you..."

Teresa, thanks for checking in with me. No new cancer treatment yet but I'm doing pretty well. Still have a lot of nerve pain in and around where they did a lung "wedge" resection last year. My other tumors continue to grow slowly in the neck, left lung and lymph nodes under my arm. My focus right now is on getting some Hyperbaric oxygen treatments done so they can extract some teeth and rebuild a set of teeth to do the work. In many cases such as mine when you lose a salivary gland it changes the overall health of your mouth and teeth getting destroyed is not uncommon. Radiation to that area is another contributing factor to poor teeth. The Hyperbaric treatments are supposed to help the healing process when they pull teeth and operate in your mouth. I am in the process of getting most of these treatments done locally where I live before I have the extractions done. The Mayo Clinic Hyperbaric team is recommending a total of at least 30 treatments. 20 prior to surgery and 10 after. One treatment a day for about 2 hours. If I can get most of them locally I wont have to spend 6 weeks in Minnesota during the winter. That's where I am at right now......hope you and everyone else in the group is doing well.
Pat

Hi Pat, @dakotapat

Thanks for letting us know how you are doing. I'm glad to hear that there has not been a need for any new cancer treatment. Hyperbaric oxygen treatments sound promising to help you with the healing process.

I hope you are able to find a location for that treatment closer to your home.

Teresa