Hello @zichichvj, I would like to welcome you to Mayo Clinic Connect along with @colleenyoung. I can certainly agree with you about not wanting to repeat test or to be exposed to additional unnecessary radiation and I understand the road that you have ahead of you to get your health taken care of. It looks hard and long but goes very quickly when looking back at it. I do not share all of the same issues you have described but some similarities. I have been to the Rochester Mayo Clinic. I was diagnosed with a rare disease that no other doctors were familiar with. I traveled from Las Vegas, Nevada to Rochester Mn Mayo Clinic because I wanted the best care possible without undergoing all of the unnecessary and repeated tests my local doctors were performing and recommending.

You asked where do you go from here? The first step is to go to the site that @colleenyoung suggested, http://mayocl.in/1mtmR63 , click on "Make an appointment" and just fill out the information. If you would like to just go to the site and look around. There are no commitments until they accept you and are reviewing your history and previous test results. I went to the site a dozen or so times before I decided to just fill the information out and see what happens. I requested a specific doctor for a specific reason and and was praying for a specific outcome and that is exactly what I got.

"To avoid repeating test" you may need copy's of the test that you have already had done. I would imagine this would be required wherever you decide to go. I called all of the hospital radiology departments and requested copy's of my tests on Compact Disc and or Paper, then picked them up in person to avoid issues. I obtained copy's of all ER reports and Doctors reports. There was no charge for copy's of my tests. Once the Mayo Clinic staff has reviewed the information you fill out on the Make an Appointment page, they will call you and tell you their decision. The Clinic representative may then request specific copy's of your tests. Once they are reviewing your tests there may be some commitment and insurance obligation. On the, Make An Appointment page, put all of your concerns in writing to make sure everyone is on the same page. There are phone numbers at the same link to speak to a real person if you wish to do that in advance of filling anything out.

@zichichvj, I know you have more questions, but I just wanted to get the ball rolling. I would also invite others @osprey650 @hopeful33250 @predictable @PatMattos @ronaldpetrovich to share any information they can offer you regarding this. I hope this is not too much information at once. Feel free to come back and ask specific questions.
Best wishes that you receive guidance as to where you should go.
Von @vdouglas

Jump to this post