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← Return to Inability to stop diarrhea
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Diarrhea can be caused by so many things. @66andcounting has your diarrhea stopped altogether. Was the cause ever discovered?
@rinstaffordaz: In many people, scleroderma harms structures beyond the skin — such as blood vessels, internal organs and the digestive tract. Here is more information from Mayo Clinic: http://www.mayoclinic.org/diseases-conditions/scleroderma/home/ovc-20206014
@joyful1 @ctkoontz @suzylulu @mooneagle and @dash99999 have talked about scleroderma here on Connect and may have more insight for you with regards to the diarrhea. I'd also like to let you all know about the upcoming Video Q&A about Scleroderma on November 15. See more details here:
https://connect.mayoclinic.org/webinar/video-qa-about-scleroderma/
@rinstaffordaz did you decide to go ahead with the surgery? How are you doing?
Replies to "Diarrhea can be caused by so many things. @66andcounting has your diarrhea stopped altogether. Was the..."
Yes I did have the POWER PORT surgically installed in mid October
My wife and I were being trained ( As we had been with the P.I.C.C. Line ) by the Home Care Nurses
The second day of training the nurse confirmed a temperature of 100.7 and said she had to report this to the Mayo staff
Two hours later after completing a two hour massage and feeling great I checked my voice mail and the Mayo's message said report to the hospital's emergency department immediately
I was admitted for 5 days numerous CT Scans
Lab works,
The infectious disease team was able to determine I had a blood infection and urinary Infection as well as E Coli bacteria infection
They concluded due to the infections that the POWER PORT was compromised and would need to be removed
They recommend going back to the PICC Line
THE first 3 days I was limited to clear liquids to rest the Gut
The last 2 days I could eat anything and did left hospital feeling better and for 2 to 3 days ate too much then the Constipation returned and extreme Bloating and Pain
Now on second straight day of Diarrhea
Two steps forward five steps back
Sent home with Levofloxacin antibiotics administered through PICC LINE daily
Wound from POWER PORT must be dressed and changed daily
Just living the dream
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Went to the Dr. this week. He renewed my pain medication for my back pain. Take 1 pill every night to get to sleep. The bonus is it continues to regulate my diarrhea so that I can say I am now normal! Nice side affect! I don't worry about becoming addicted since I only take 1 pill/day.