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@immmm

@hopeful33250, @tomewilson
Thank you!! We have started videoing the dr. Visits since you mentioned it and this has been even more helpful with my friend in the hospital, no one wants to miss the doctor coming by! Now that we know about YouTube, we won't have to break it down to little 1minute sections to be able to send!!!!!! I thank God for y'all! (Yep, I'm a Texan!)
My concern for my friend is that she was short of breath with minimal activity, increased fatigue but just mentioned at her monthly visits when the doc would ask-- when she went in, her O2 was at 76%. She had no idea-- leaky valves in heart had worsened since her last echo done 6months ago, now has pulmonary artery hypertension. I feel that maybe the cardiologist is not as familiar with the havoc that NETS's venom can have on the heart. The ER doctor wouldn't "bother" her cardiologist because her EKG was normal. The oncologist had called, thank goodness. Thank you all for your responses and helpful hints.

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Replies to "@hopeful33250, @tomewilson Thank you!! We have started videoing the dr. Visits since you mentioned it and..."

Hello Karen @immmm

I am sorry to hear of your friend's heart problems. Yes, there is a cardiologist at Mayo in Rochester, who is recommended by NET specialists all over the U.S. for her work with NET heart valve problems. I wish your friend well.

Will you keep us posted on how she is doing? Please follow up with any questions you may have.

Teresa