← Return to Lichen Sclerosus: Any other women dealing with this disease?

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@danybegood1
I have had lichen sclerosis for many years. I had been misdiagnosed several times. Herpes was a common one. The first time that one almost ended my marriage. About 4 years back I had the worst outbreak of my life. My dermatologist tried everything, including prayer. I would get white cracked skin with horrible blisters. It was the worst pain of my life (I went through labor with a ten pound baby with broken ribs) and this was worse. It lasted months. I couldn’t even walk. I used a sits bath to pee in. The thought of a bowel movement would send me into a panic. Every cream burned even more. Finally my doctor went old school. The only thing I could put on it was a mixture of Crisco and honey. I keep it by my toilet and use it anytime I get a small tear. She explained that they use it on babies because it is so mild, the honey helps healing and it also acts as a barrier so the urine doesn’t sting. She even had me try inserting Valium vaginally. Even better she started me on a medication called Nystatin. The white blistering was yeast gone wild. I have been taking one pill a day ever since and have not had a serious outbreak in years. For me it was a miracle.
I also understand the pain when having sex and the emotional pain of not having sex. I am married to the most amazing man of forty years. We have not had sex in years. The thought of any trauma that would cause an outbreak is overwhelming to me still.😢

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Replies to "@danybegood1 I have had lichen sclerosis for many years. I had been misdiagnosed several times. Herpes..."

@dimples4321
Your post is helpful because of your honesty. Thank you for discussing the pain and effects on everything from urinating, bowel movements and sex. And, the emotional pain of not having sex. Such intimate effects from LS and where else would I find this discussion?? I'll let you know if I find it!