Connect← Return to Has anyone taken bedaquiline (Brand Name: Sirturo)?
Discussion
Has anyone taken bedaquiline (Brand Name: Sirturo)?
MAC & Bronchiectasis | Last Active: 4 hours ago | Replies (11)Comment receiving replies
@mjb24 Wow, that is one powerful drug, normally used for multi-drug resistant TB. The published literature actually says not for NTM. Did the doctor order sensitivity testing to be sure your strain of infection is susceptible to Sirturo? If not, maybe ask that it be done before you agree to try it?
I'm curious which other antibiotics ( like Arikayce) you may have tried?
Replies to "@mjb24 Wow, that is one powerful drug, normally used for multi-drug resistant TB. The published literature..."
Connect
@sueinmn Yes, he has ordered sensitivity testing. I forget where he said it needed to be done but they are taking care of that. I am currently on Ethambutol, Clofazimine and Arikayce. The Azithromycin I just stopped. I had to stop Rifampin and then rifabutin awhile ago because of intolerance. I was also unable to tolerate Linezolid and Nuzyra. I have been to UF Health in Gainesville for a 2nd opinion and Dr Mugallinski also mentioned a dual lactam therapy (imipenem and ceftaroline). That is still a possibility, however, my ID doc thought we should look at Bedaquiline first. He said that it may be difficult to get insurance to cover the other and it would mean 2x a day IV treatment.