← Return to Lichen Sclerosus: Any other women dealing with this disease?

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I have had LS for many years. It started on my side and now has expanded to my private areas, neck, back, arms, legs, everywhere my skin comes into contact with my own skin….back of knees, elbow crease, etc. I have been to Duke Medical Center and Dr. Libby Edwards (supposedly reknown for treating LS), not to mention about 4 other dermatologists. There has not been enough research on it because it is mainly affecting women, my opinion. I have given up on ever finding any drug or supplements that truly make it go away. I use clobetesol cream on private areas twice a week. I use a rich lotion for my back, along with cold pressed castor oil.

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Replies to "I have had LS for many years. It started on my side and now has expanded..."

@psa
Has anyone talked to you about lichen planus? I'm wondering about your diagnosis because if it's outside of the vulva it could be LP