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DiscussionThankful for finding the correct diagnosis
Autoimmune Diseases | Last Active: Oct 3, 2017 | Replies (8)Comment receiving replies
Replies to "Yes John all the diagnoses but 2 which are still being tested and consulting with the..."
@techi You said it, Lisa. One thing you must keep in mind. Many doctors spend their careers protecting the disease from the strongest efforts of the patient. I have been diagnosed, formally, with about 40 different diseases, and about 20 of these diseases failed the tests of time and lab. Of course, this fact alone is good evidence for one diagnosis, some form of Amyloidosis. And, of course, it also makes for a great source of career security for many doctors, etc. Even at Mayo,. although I had strong evidence of Amy, the protocols there demanded that I subject myself to 4 months of testing and poking and prodding before I could be diagnosed. They did find a few small things here and there, but in the end, they missed the diagnosis entirely, although they had "discovered" all the evidence they needed for the diagnosis. But, of course, that would have negated the job security things.
@dear oldkarl, peach here. just read this post of yours re: diagnosing. why, why with all our progress it seems as if the medical field is going backwards. perhaps it is a form of protection for the doctors as not to be sued in case of a wrong diagnosis? in any case, where is the progress? if so, why don;t they reveal such to the public or do i not read the proper paperwork? i am sorry for all of us suffering peoples hanging in there waiting for a revelation. a hug to all.
Thank you Lisa. I appreciate your valuable insight. I have the same feeling towards Mayo Clinic doctors, nurses and staff. My personal experience is that they really use a team approach. For me it means I generally get a new family doctor every few years but I'm good with that because I know there is continuity in the medical records and they all use a patient's records for treatment. I have had to bring a few new doctors up to speed with my health issues but that is on me to make sure they know my symptoms and what I'm taking. The only frustration for me is filling out all the pre-appointment forms online and then getting another copy in the mail to fill out a week before the appointment.
Hoping you have a great day. John