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Behcet's Syndrome: What treatment has worked for you?

Autoimmune Diseases | Last Active: Oct 7, 2019 | Replies (22)
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@mel66

Hi everyone.Thank you for admitting me I was recently diagnosed with what most likely is Behchets. I am going through painful acute bouts of vasculitis. I have been on Prednisone and Medrol for almost 2 years with no diagnosis and relief was temporary. It's a rare disease and it has been active for a while. My rheumy prescribed Mycophenolic acid. Azithriopine was very adverse to liver. Any success stories on Mycophenolic acid? It is experimental still. It's such a horribly painful condition that just loves my joints and muscles. Love to hear success and have support. Thank you Maria

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Replies to "Hi everyone.Thank you for admitting me I was recently diagnosed with what most likely is Behchets...."
John, Volunteer Mentor | @johnbishop | Sep 30, 2019

Hello Maria @mel66 -- Welcome to Connect.
I did find an article that mentions the treatment and hopefully will provide some helpful information.
ResearchGate - Mycophenolate mofetil as a novel immunosuppressant in the treatment of neuro-Behçet's disease with parenchymal involvement: Presentation of four cases: https://www.researchgate.net/publication/221698914_Mycophenolate_mofetil_as_a_novel_immunosuppressant_in_the_treatment_of_neuro-Behcet's_disease_with_parenchymal_involvement_Presentation_of_four_cases

Have you already started taking Mycophenolic acid? Just wondering if it's helping with your symptoms.

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