← Return to Behcet's Syndrome: What treatment has worked for you?

Discussion

Behcet's Syndrome: What treatment has worked for you?

Autoimmune Diseases | Last Active: Oct 7, 2019 | Replies (22)
Comment receiving replies
@senlw

Hi John I know that's the line I've heard take it 1 day at a time....I think that's the hardest part for me. I want to visit the world see amazing things meet people from every continent but how do you do that when you can only live 1 day at a time? Please do not get me wrong I'm not trying to sound bitter unfortunately it is just our reality.
But to answer your question I tell folks I have bad days and I have really bad days. On my really bad days I have my 3 amazing dogs. They lay with me in bed all snuggled with me and for me love from my babies is true love and they look at me with their eyes like it's ok mommy we got you today. But on those really bad days I have to be there for them too so that's what keeps me going. My babies and I help eachother. And well a lot of sleep and meds unfortunately.
What keeps you going on your hard days? Any good advice?

Jump to this post

Replies to "Hi John I know that's the line I've heard take it 1 day at a time....I..."
John, Volunteer Mentor | @johnbishop | Apr 2, 2019

Hi @seniw - To be honest, when I have a really bad day I try to surround myself with positive thoughts. I've found 2 especially good sources for me besides my wife to help me focus on positive thoughts.

A website with a lot of short videos on staying positive and how the brain works... https://www.resilientoption.com/.
A Mayo website page - How to be happy: Tips for cultivating contentment ...https://www.mayoclinic.org/healthy-lifestyle/stress-management/in-depth/how-to-be-happy/art-20045714

That and I always keep hope by trying to learn as much as I can about my health conditions and any new treatments that may not help me but will help others in the future.

VIEW AND REPLY