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mrmaid11 (@mrmaid11)

Behcet's Syndrome

Autoimmune Diseases | Last Active: Oct 7, 2019 | Replies (24)

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@jackie30

Hi Shiela,
I have Behcets, I was diagnosed over 30 years ago. I know how frustrating it is. At this time I do not take any medication. I was told as I got older the immune system weakens and less flares. I did lose the sight in my left eye from all the steroids, causing cataracts and glaucoma. I had surgery on left eye, but gradually lost my sight. I took chlorambucil to supress my immune system. Most of my flares now are the mouth ulcers and I do have a lot of stomach issues. Hope this helps, because I know how alone and lost one can feel.

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Replies to "Hi Shiela, I have Behcets, I was diagnosed over 30 years ago. I know how frustrating..."

I have to know how are you not on any medications? What is your magic pill? I'm so tired of all of the pills I have to take!! Its never ending plus I just started a new biologic crossing my fingers I've only had 1 dosage. My biggest fear is losing my eye sight I just don't know how I will handle that……