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mrmaid11 (@mrmaid11)

Behcet's Syndrome

Autoimmune Diseases | Last Active: Oct 7, 2019 | Replies (24)

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@johnbishop

Hello @senlw, welcome to Mayo Clinic Connect. Thank you for sharing your story and joining in the discussion. It really helps when members with the same or similar symptoms are able to share with each other and know they are not alone. I don't have Behçet’s but do have several other autoimmune diseases and have found that I just have to take it one day at a time. Is there anything that helps you get through the bad days?

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Replies to "Hello @senlw, welcome to Mayo Clinic Connect. Thank you for sharing your story and joining in..."

Hi John I know that's the line I've heard take it 1 day at a time….I think that's the hardest part for me. I want to visit the world see amazing things meet people from every continent but how do you do that when you can only live 1 day at a time? Please do not get me wrong I'm not trying to sound bitter unfortunately it is just our reality.
But to answer your question I tell folks I have bad days and I have really bad days. On my really bad days I have my 3 amazing dogs. They lay with me in bed all snuggled with me and for me love from my babies is true love and they look at me with their eyes like it's ok mommy we got you today. But on those really bad days I have to be there for them too so that's what keeps me going. My babies and I help eachother. And well a lot of sleep and meds unfortunately.
What keeps you going on your hard days? Any good advice?