My daughter is 58 years old and was finally diagnosed
with Bechets at the Mayo Clinic 15 years ago . After a dental procedure she .
developed little painful sores in her mouth, thinking it was Herpes . As it got worse she went back to the dentist who said it was not Herpes but didn’t know what it was. Developing severe headaches she saw a neurologist who suspected Bechets but wasn’t sure. For some time thereafter the various doctors were puzzled, tried prednisone which helped reduce some of the inflammation. Her mouth cleared up and she then developed the same kind of sores in her vaginal area which were extremely painful..along with the ulcers she had severe joint pain and GI problems. Fatigue became a major problem. She is a professional but had to stop practicing and did so for 10 years during which time she tried methotrexate and Embrel. The Embrel helped some but it was off and on because the Embrel compromised her immune system and she got sick often which required that she be off the Embrel during that time. She is now back to work, tries to pace herself but continues to have periodic flares, breaking out, headaches severe fatigue, with no warning at all.
An interesting fact: when she was 16 she had encephalitis. When she in her first year of law school, right at exam time, she had encephalitis once again and was hospitalized. Much later on we found out that having encephalitis more than once was symptomatic of Bechets. Right now she takes meds for the pain for whole body arthritis like symptoms which cause inflammation through her body. There is no cure and so far she doges the best she can.