Hi Helena,
I was diagnosed with non resectable stage 4 pancreatic cancer in March of this year 2026. I am on Gem/Abrax every two weeks but I am on a clinical trial at Rochester Mayo, so I am also getting two trial drugs once a month. The trial drugs are Nivolumab and Imzokitug which are immunotherapy drugs. My CA 19.9 started at 2990. It dropped to less than 35 after 3 treatments and has been under 35 for 6 months. My tumor has shrunk to less than half of its original size. The oncologists say it will not decrease in size much more since the tumor consists of mostly scar tissue.
For the most part, I am leading a normal life with the exception of some side effects, the worst being itching. The only thing that relieves the itching is Prednisone which the oncologists want to use sparingly.
I am being realistic and know there is no cure for me so I do my best to embrace each good day that I have.