Hi @wkindel, watch and wait is hard, no doubt about that. I'm sorry to hear that you were put on hold for a very long time twice when calling Mayo Clinic. Are you comfortable with filling out the online form? It is another option that doesn't require you to be on hold. You can find the online intake form here: http://mayocl.in/1mtmR63

I hope that you are able to get some sleep tonight. When is the next MRI scheduled?

second MRI done and showed no change physically. However, I have noticed I am experiencing some other side effects, probably due to stress of having a tumor. Still sleepless and now developing paranoia. Trying to make myself realize it is just stress and not to fall into believing the feelings. Moving my case back to my local nuerosurgeon and neurologist since watch and wait can be done here. No need to travel 120 miles for periodic MRI reviews. May still contact Mayo.

Good to hear from you, @wkindel. Stress is definitely a contributor to anxiety, paranoia and sleep issues. It is certainly difficult to not let the tumor rule your mind and your life. Have you considered different approaches to get help? There are many things to choose from, like talking with a therapist or doing yoga or other forms of exercise. While social activities can help during the day, you might consider a targeted therapy that helps with those difficult hours at night time.

@hopeful33250 and @kariulrich can tell you more about Dr. Sood's online stress and happiness program http://stressfree.org/
Here's also a recent post from the Cancer Education Center about mindfulness https://connect.mayoclinic.org/newsfeed-post/being-mindful-in-the-moment/

I'm just throwing things out there. Not sure what might work for you. What have you tried?

Thanks I will check out the info

Hello wkindel, I have a left wing sphenoid meningioma. What was your diagnosis?

I was diagnosed two years ago January 2016. Had transphenoidal partial resection. Still living with the tumor so I understand where you are coming from

Hello @cnesselroad, I see that you recently joined Mayo Connect - we are pleased to have you!

We appreciate your sharing your experience with us. How are you feeling?

Teresa

Feeling a little down but not giving up hope. It honestly doesn’t bother me that I might end up blind in one eye. Just wish I could get some kind of insight on if all of the wierd symptoms are connected. Thank you for replying it means allot.

@cnesselroad

Often by talking with others who have had similar experiences, you can get a lot of information to put your mind at ease. Many hospital systems have personal support groups for people who have had brain tumors, have you connected with any of these? Also, The American Brain Tumor Association has a website and listing of support groups by states. Here is the link, http://www.abta.org/brain-tumor-treatment/brain-tumor-support/support-groups/.

Will you check it out and see if you can get any answers or help from them?

Have you asked your doctor about the connection of these other symptoms?

Teresa

Thank you hopefulI will check out these links you sent me. My doctor told me to go ahead and try invitro but everything I have read says that pregnancy can cause the tumor to grow At exacerbated rates, so I really don’t trust his opinion anymore. My gyno doesn’t think think they are related. My neuro ophthalmologist doesn’t seem concerned either.