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Newly diagnosed with a meningioma. 2 opinions differ
Brain Tumor | Last Active: Mar 12, 2023 | Replies (37)Comment receiving replies
62, also. Newly diagnosed. First MRI in my wait- and- watch period is in a few days (3 months since initial diagnosis). No symptoms. Two NSs said wait and see. One said...no big deal... if it changes, we just take it out! I asked about waiting and if in ten years it grows and he said it's not a big difference between 62 and 72. Thought....yeah.... easy for you to say. It's not your head. The other place I only saw the PA and she was not a bundle of info. I just follow threads such as these and learn as much as I can.
Replies to "62, also. Newly diagnosed. First MRI in my wait- and- watch period is in a few..."
Welcome, @lee1967, Did you have surgery?
Thank you as well for your comments. I hope they are helping you now. I have not had an EEG yet. And yes, some of the doctors seem less concerned about the emotional part of all this. I guess I understand it since it is the physical stuff they (neurosurgeons) work on. I am hoping Mayo takes a more holistic approach. I am losing sleep but trying to just deal with it the best I can.
No they said the they not to do surgery for a first bleed , but they will if it happens again.
EEG? No. What's that for ?
I had a 2cm meningioma removed at Mayo in January. It was diagnosed in 2018 and we’ve been watching it annually (wait and watch). I had no symptoms but because it was growing, albeit slowly, and it was at the base of my skull and starting to compress my spinal cord my dr recommended it be treated. I consulted with a radiologist who advised surgery first because radiation can cause some swelling at first. My surgery was 10 hours and I was in the hospital 5 days. Left the hospital using a Walker due to balance and coordination issues. Have physical therapy 4x a week and am seeing progress. My surgery involved my spinal cord which resulted in loss of mobility in my neck and left arm. That is resolving with therapy but I wasn’t told about that before the surgery. 80% of tumor was removed. I highly recommend Mayo for this type of surgery. I only wish I had been told more about what to expect post surgery. I’m glad there is a way to consult with Mayo. I would expect they’d want to treat if you are having symptoms due to the tumor.
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I'm sorry your doctor's don't seem to understand how scary this is. Mine was bleeding and causing seizures. I had a TIA in the hospital that just complicated everything. Did anyone suggest a EEG for You? I wish you well.