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Doctors can't decide on diagnosis
Autoimmune Diseases | Last Active: Oct 22, 2017 | Replies (10)Comment receiving replies
Has any doctor mentioned Sjogren's Syndrome? Do you have dry eyes or dry mouth? I have SS and I have the brain fog, possible IBS, sores in the mouth, GERD, fatigue, joint pain and the dryness. The dry mouth causes the mouth sores because the saliva doesn't have the proper balance to kill the germs in your mouth. Of course many Autoimmune diseases have overlapping symptoms and that is what makes a definite diagnosis so difficult. I was first diagnosed with Lupus and then it was changed to SS. There is no black and white way to diagnose. It is very frustrating.
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@kibwezi Hi. One of the triggers of Sjogren's, and SICCA which is very close to Sjogren's, is some form of the Protein Deposit Disease, or Amyloidosis. Sjogren's and SICCA are actually just sets of symptoms, or syndrome, as you say. I suggest you have your Serum Free Light Chain and total daily output of protein checked. If your Bindings sFLC(c) is over 1.6 mg/deciliter, and/or your daily protein output is over 0.5 Grams per day, you are approaching the danger zone, and prepare to have treatment. In the meantime, look at ALNYLAM.com, Mayoclinic.org, and Amyloidosis foundation, and Wikipedia.com. The Wiki articles include a list of 28 disorders and deseases which have the Protein deposit disorder as part of their makeup. This includes Sjogren's, SICCA, Alzheimers, Parkinson's, Huntington's, etc. Read the stuff on various forms of Amyloidosis. There are over a thousand types.