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Adult Life after a Traumatic Brain Injury (TBI)

Traumatic Brain Injury (TBI) | Last Active: Dec 3 3:08pm | Replies (187)
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@etadams

Thank you for sharing your story. I have a son that has a TBI, since the age of 15.He is now 31. He is frustrated, I am frustrated, and no one in the family wants to deal with his outburst and threats, controllable or noncontrollable. My biggest concern is where will he go when I am gone?

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Replies to "Thank you for sharing your story. I have a son that has a TBI, since the..."
Lisa Lucier, Moderator | @lisalucier | May 30, 2019

Hi, @etadams, and welcome to Mayo Clinic Connect. So understandable you'd feel frustrated, and your son, as well.

I'd like to invite some of the other members in this discussion, like @dawnpereda @treyaj @becsbuddy @hopeful33250 @david33 @lrbrush @lakelifelady and others to offer any thoughts or suggestions related to your son's outbursts and threats and also your biggest concern of where he will go when you are gone.

What kind of living arrangement would you ideally like to see for your son, someday when you are gone, etadams?

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Dawn Pereda | @dawnpereda | May 30, 2019

Hi there and welcome!
I'm so glad you're sharing your journey with us!! You are not alone. I know that where we are located, they have group homes for men who have suffered/are living with a brain injury. These are professionals who know how to deal with those behaviors while trying to give the highest quality of life possible. Also, have you looked into any kind of an outpatient treatment situation? Those lingering symptoms can be so self defeating for the tbi sufferer, and equally as painful for the family. Treatment options are always evolving and perhaps there is something out there that could be of help. Lastly, has your son had a recent physical? The reason I mention this is that as we age or bodies change and perhaps another disease process is aggravating TBI symptoms. Just some ideas. Please continue to reach out. I hope you will find some comfort on this site. Please listen to the podcast listed in my initial posting. Perhaps it will also give you some comfort. Best to you and your son.

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Lisa Lucier, Moderator | @lisalucier | Jun 4, 2019

Hi, @etadams - just wanted to reach out and see how things are going this week with your son and the outbursts and threats you mentioned with his TBI?

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Becky, Volunteer Mentor | @becsbuddy | Jun 11, 2019

@etadams I can certainly understand your frustration. My son was a real problem from the day he was born. I was frustrated, sad, and scared. Like he was angry at the world!
Do you have a center for people with disabilities in your area? Your library should have a list of resources. They can help you work thru your plans for his future. Maybe even help him move now when he is young enough to meet and participate with others. And you can get some semblance of your life back.
I really wish you luck. You’ve been on a long, hard road. Becky

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