← Return to Adult Life after a Traumatic Brain Injury (TBI)

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@kdubois

Hi @dawnpereda, I have a brain injury also, and it's taken me years to come to terms with what happened to me and how to negotiate life when I'm not "me" anymore. Even worse is that I learned that I never even needed the brain surgery that caused the injury (basically, my home medical center misdiagnosed me and led me to having the surgery -- which I never, ever needed). Thankfully, the doctors at Mayo that tested me to figure out exactly what brain issues I have also took ample time afterward to ensure that I was okay and helped me figure out my path forward.

My symptoms: incredibly irritable for no reason, horrible memory, horrible attention issues, very easily overwhelmed, unable to prioritize (down to the level of not being able to organize my thoughts), inability to find the correct words to say (always on the tip of my tongue), transposing numbers in writing and in speech, inability to decode information (for example, while watching Jeopardy, I know that I know the answer and that the information is in my brain, and I know if a contestant answering is correct or incorrect, but I cannot retrieve and say the answer)... a definite change in who I was prior to April 20, 2009 (<-- the date of my surgery).

My injury is primarily in my right frontal lobe, so Mayo figured out that my executive functioning is impaired, which explains all of my issues. (Interestingly, it's not that my memory is bad, but my attention is compromised so much that things never get into my memory.)

I know that I will never be the same, but it can get better. Here's what I've done...

I see a psychologist who deals with medical stuff regularly. We talk about what happened, and I am slowly learning to forgive my doctors and learn to adjust to my new brain.

I also work with a neuropsychologist on something called Cognitive Behavioral Therapy (CBT). He is teaching me how to use other parts of my brain to take over the functions lost by the injured part of my brain.

For example, as of last June, I was unable to remember a simple, three-item grocery list five minutes after I had tried to remember it. Then I'd write the items on a sticky note and attach it to my wallet, and I'd even forget that I had the list with me at the store. But now, by using strategies my doctor taught me, I can remember 80% of a grocery list 30 days later.

He's also taught me simple tricks to help focus oxygen to my frontal lobes to help my thinking, refocus negative thoughts elsewhere, control and slow down emotions, etc. I no longer bite my family's heads off for no reason. I don't get as easily stressed out. I can now actually learn new things again. I kid you not... this stuff works!

I suggest finding a neuropsychologist who works with patients on CBT. It has helped me significantly, and honestly, I wish that they'd teach people those tricks starting in late childhood. I feel that the things I'm learning would benefit most people and help us all be able to manage our lives as a whole.

There is hope!

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Replies to "Hi @dawnpereda, I have a brain injury also, and it's taken me years to come to..."

It is so encouraging and affirming to read others list of symptoms and to recognize one's self in the post. Oh my yes, that is how it is! However, we must keep up our strategies to manage and cope! We can help each other!

I would love to hear more about how to focus oxygen on ones frontal lobes. I am familiar with CBT. I posted my story here, but I can't seem to find it tonight. I did begin singing with tapes again and listening to music more often, both recommended on this site. The singing and staying focused on the lyrics has been a shock! I kept being distracted by other thoughts. I had no idea it was that severe. But I just start over and it truly is helping. I have speech problems, wrong word, mispronounce, slight stutter, etc. The singing also comforts me and decreases my anxiety. If I am tired, hungry, or have to drive in traffic, my speech is worse. The day after my injury, my speech made no sense at all, so many wrong words. I am greatful for all of you.

@kdubois Hi Kelly. Could you help me with the doctors you saw that got you on the right track. I have had a tumor removed as well and am experiencing the same post op symptoms. I’m trying to get on the right track.

Could you provide more information on the CBT? What is the name of the doctor you are seeing? I’m in desperate need for that therapy.

Hi. I just recently contacted mayo. I had to have part of my temporal lobe removed 11 years ago. I've been having worsing cognitive function since then and no one can figure out why it'd getting worse. Any advice about my appointment with mayo?