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Anyone else have a Redundant/Tortuous Colon?
Digestive Health | Last Active: 3 days ago | Replies (1667)Comment receiving replies
I didn't know this could happen..I'm so glad I read this.. I'm going to gastro next Monday..
I thought it was the Xolair shot ( for allergies that stopped my gut signals..( had one July 23 and then every thing stopped..Three to ER (takes 10 hrs..one of our hospitals closed here.. very rural.. left this one overwhelmed) and then a coloscopy and now having to "clean myself out every week end.. ..
I've been constipated all my life.. 72 now.. and have tried Amtiza, Isbrella and Linzess and finally for 3 years Trulance was working.. and then .. the shot and it all stopped..(I have systemic scleroderma..under control ..) then they tried Motegrity 2 mg and after 5 days I had to stop.. tried 1 mg and had to stop.. gastro was like .."why?",, because I was so sick and starting to have trouble swallowing.. ( allergic.. allergic to lots of meds)..
So now I have a TWENTY minute appt they told me (reprimanded for too many portal questions while dr and nurse were out for a week) and I have to be very ready..
I have a tortuous colon too.. so I'm taking my timer in (to keep myself from chatting) and opening with ..I have not used the bathroom for a week.. and sit there.. no conversations about colonoscopy..I read my own chart.. and they sent a letter.. this is so miserable.. MiraLAX every night and pear juice.. and the those 2 nasty little Biscadyls.. and misery for 2 days.
God help us all!! No one else understands but us..and Jesus!! Lifting us all up in prayer!!
Replies to "I didn't know this could happen..I'm so glad I read this.. I'm going to gastro next..."
@standinginfaith
I'm curious why you're taking miralax with pear juice?
I do take miralax daily. I start the day with two pint glasses of water (with thyroid med) I then have a cup of coffee with my miralax.
-riley
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@standinginfaith
thank you for your reply! wow you've been through the ringer on this colon thing. My hope for you is that the test shows no polyps!
I was in the ER ten days before my colon because of abdominal pain. Just severely backed up. Interestingly enough not much poop in the low portion of the colon. It was getting stuck along the way. ER doc suggested more fiber.
My colon surgeon/doctor has suggested high fiber to help. The fiber foods are making it all worse. I've been bloated for days. If I drink more, it makes it worse. I had a horrible experience yesterday at work and was so very bloated. Painful. I have determined that I will not eliminate fiber but I will try smaller meals of low FODMAP foods for two weeks and see what happens.
My colon surgeon/doc called me after. Longest colon they've ever seen. Said it was very twisty. Cautioned me to go to doc anytime I feel severe pain because a twist can block and needs emergency care. He says I am low risk for cancer with two clear tests so maybe there will be other screening techniques for me in the future. I'm 62 now. I'll avoid that 72 test!
Thank you for reaching out to me. I wish you well