Hello...
On September 15, 2017 I had a left side mastectomy with 27 lymph nodes removed. I underwent 6 months of chemo but no radiation. I definitely have lymphedema. My arm is not enlarged but my armpit feels like it has a metal claw clamped down on it 24/7. I have significant numbness to the area below my armpit and around to my back. I try my best to do self lymphatic massage and breathing exercises to manage the discomfort but this is different from the pain I have at the my incision site.
I have been diagnosed with Post Masectomy Pain Syndrome brought on by damage or disruption to the nerves at my incision site. One year plus post surgery I can not wear my prosthetic. Anything remotely touching my skin at my incision site is very painful and sensitive. Wearing a bra is an extreme challenge.
I have had physical therapy, acupuncture, and massage with no positive results. I have been taking Gabapeten and Nortriptyline for 4 months, again I am seeing little relief. I am now working with the Pain Management Dept to next try an intercostal brachial nerve block. I think the lymphodema I’ll always have to self manage but this nerve damage pain is another story.
I will report back after I have undergone the procedure. Hope to have some encouraging news to share.